Mystery Diagnosis
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Junior Member
Registered: 08-13-08
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2 years ago I started noticing that my right eye was starting to protrude and that there was slight swelling around the eye. as time went by the pain would be so severe that i was no longer able to make it through a nights sleep and it started to become difficult to even perform basic daily tasks. the ER thought there might be a brain tumor and i was admitted. they later found no tumor but continued to use steroids and heavy duty pain medication. most doctors have decided to use the diagnosis of Orbital pseudo tumor (or tolosa hunts) but only as a diagnosis of exclusion. i now am dealing with double vision, photo sensativity, right eye proptosis, and extreem pain. doctors cant decide if i need to be seen by a neurologist, optamologist, neuro opto, neuro opto plastic, etc.... USC, UCI, Loma Linda, RMC, UCLA have all had different takes and all said to just follow the last doctors orders if that is controlling the swelling despite the previous doctors saying that the next doctors advice is what we were seeking.
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Junior Member
Registered: 08-20-08
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quote: Originally posted by darkangel31:
I am a 31 year old female who is currently diagnosed with multiple ailments, which are : IBS, Mitral Valve Prolapse, chronic rhinitis, unspecified immune deficiencies, genital herpes.
About two months ago, I began experiencing these stomach/side cramps whenever I layed down on my stomach to read a book or do other things. I also had a dull ache in my lower right hand side. I take Zinc, and, my doctor said that could be causing the cramps. I stopped taking it, and, the cramps seemed to go away. Cut to about a month later....I'm getting the stomach/side cramps again along with lower back pain, my abdomen hurts all over (though mostly in lower right quadrant). I've noticed I have a tender spot on my back on the right side, and, upon gently tapping it, a surge of pain is felt there that travels all the way through to underneath my ribcage on the right side. I'm feeling tired, nauseated, walking seems to exacerbate the pain. I've been told it's a UTI, and, perhaps, even due to the IBS. I'm taking 250 mgs. of Cipro 2x Daily, but I'm still wiped out and in pain. I've had numerous scans, ultrasounds, bloodwork done, and, aside froma UTI, I've got nada, apparently. Any ideas??
HI darkangel, i'm not very experienced with these postings. have you received any replies with regards to some ideas about your symptoms? i have right lower pelvic pain, that actually goes away during menstruation and pregnancy and breastfeeding too. I've since stopped breastfeeding for a year now and the pain has returned. I had two laparoscopies before i became pregnant the second time to try to diagnose the pain, but doctors couldn't figure it out. i'm in a lot of pain again so am going to make a trip to the doctor. I'm curious if you've gotten any farther with a dx. |
Junior Member
Registered: 08-21-08
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My 8-year old dtr has a number of minor unusual symptoms, which may be unrelated, but seem odd to me. To start with, she was a full-term, healthy baby, born with a quarter-size hemangioma near her left armpit, which has improved dramatically, and is barely noticeable. I also noticed other differences on her left side, including her left earlobe, which looks a little ragged at the top, like it didn't form completely, and her left eye turns in (cross-eyed). The eye problem is genetic, for which she wears glasses. Hearing test at birth indicated hearing loss on the left side, but subsequent test normal. (Since the heart is on the left, I've made sure to have the pediatricians listen closely during checkups -- normal.) Zoom to present: Recently, she has developed an intermittent sensitivity to heat (outside), with symptoms of heat exhaustion, even though everyone else is fine (and at other times she has no problems). She also developed oral thrush, which we still don't know the cause (resolved with Magic Mouthwash), mild eczema, a complaint of having difficulty taking a deep breath (no wheezing or coughing), and cavities. All labs normal: CBC w/ diff, u/a, Hemoglobin A1C, metabolic panel, thyroid.
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Junior Member
Registered: 08-24-08
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I started sleeping my life away a year ago and lost weight without changing my diet. I got a nice tan.
My gp ran lots of tests and finally ran an am cortisal level twice. Both times it was low.
so he went with the addisons diagnosis. i take flornif and hydrocortisone and magickly I am awake now.
Problem is about every two months or so for up to a week at a time I get tremors in my arms and head and sometimes legs. I have trouble walking like my legs don't want to work right. and fall at random.
I saw a neorolagist had an mri of my brain they disided it was anxiety and gave me valium. It doesn't help. I have had anxiety attacks for years and no what they feel like and I don't have anxiety attacks with the tremors.
My brother who lives far away from me told me he also has undiagnosed mystery tremors. He went to the er one time only for it they told him it was his pot use. He doesn't have anxiety I don't use pot or any drug that isn't pescribed to me.
During the tremors I studder and/or slurr my words sometimes I can't seem to talk at all. I am supposed to see an endo in two days but I have to cancel it is way out of town and my car wont make it and I can't pay him anyway. I give up.
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Junior Member
Registered: 08-25-08
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My name is Holly.
My daughter was born and after complications during delivery, she was in the NICU for a short time. Since then, it has been one long rollercoaster ride and without any answers.
Her name is Rachel.
She will be 16 at the end of the year. Over the years, she has seen hundreds of Doctor's and Specialist and none of them have been to give us any answers.
Rachel health follows a distinct pattern #1 at her worst followed by #2 an in between phase then she's at #3 at her best and next comes #4 her downhill phase. After that it starts all over.
When she is at her worst, she runs a fever of around 103. She can barely move. Over the years, I have learned that the only thing that keeps the fever from going too high is liquid Motrin. I work on keeping her hydrated and help her go to the bathroom. She mostly sleeps the clock around. Doctors have run tests for illness but they can never find anything.
After her fever breaks, She develops pockets of fluid just under the skin that are visible. They look like bumps. She is weak and often injures herself from trying to do too much. Doctors try talk me into allowing her to go through drainage procedures. Once I allowed them to do it but it did more harm than good. At this point blood and urine tests have shown abnormalities.
Next the fluid drains away on its own. Doctors rerun the tests that had abnormal results but this time they come back normal. She is still weak but she is more alert and upbeat.
She heads downhill and fast during this stage. Her muscle knot up. She is in considerable pain. She refuses pain meds. She would rather bite her lower lip and try to cover up that anything is wrong.
Over the years, it has affected her lungs. In Janurary 2008, she began to get worse. She lost her peripheal vision. During periods of rest, which are frequent because she tires easily, her heart rate would speed up and she would black out. She has been sent to even more Doctors and Specialists and undergone more tests. I worry that she won't be able to survive to graduate from High School. She just started her Freshman Year. I do all that I can for her but it seems that it just isn't enough.
We are still looking for answers.
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Junior Member
Registered: 08-25-08
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My husband has had an on going problem with a cough were he actually gets strangled on his own saliva - then starts chocking - turns red and I think he stops breathing for a second. He actually seems to pass out...then once he does this - he comes instantly to and knows something has just happened although he does not know what...Any help out there?
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Junior Member
Registered: 08-25-08
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Hello.I am new to this site and my case has been an unsolved mystery for 16 yrs. now.I have this problem getting a full deep breath.Sometimes i can't and sometimes i can.But in between those breaths i feel suffocated and hungry for air.Some doctors want to rule out anxiety and that it's all in my head!I'm not crazy.For a month now it has been 24/7 non stop and i'm losing my mind!!Please...can anyone help??
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Junior Member
Registered: 08-31-08
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Our 12-year-old daughter began complaining about stomach aches ever since she could talk, so we just increased her fiber and she was fine for a while up until a year and a half ago. On May 4th, 2006, she just had an adjustment of her braces and dad and I took her out Friday night to eat fish at a famous local restaurant. We were told that for the next couple of days Taylor would not feel like eating due to the adjustments made to her braces. Saturday she awoke not feeling the best with flu like symptoms. We just returned from her first 4-h meeting and she was complaining of a slight stomachache. After we returned home, she was still not feeling the best. We were relaxing when suddenly she starts screaming and trying to get comfortable. So I took her to our local emergency room and they ran some tests which came back normal. After giving her some morphine they sent us home. The next day we had the same problem. We went back to the emergency room. This time we had a different doctor and he asked us if the other doctors told us that they found sludge in her gallbladder, and her liver and pancreas enzymes were high. Then he told us that the gallbladder needed to be removed and she needed to be admitted to a childrens’ hospital. So she was transferred to the closest children’s hospital, 45 minutes away in the next largest town. She was there a total of 15 days due to her liver enzymes were elevated in the hundreds and was diagnosis with viral non-infectious hepatitis. She was discharged for the Memorial Day weekend still in sever pain.
I was instructed to contact a surgeon regarding her gallbladder once the weekend was over. I waited 4 long days to contact the surgeon. The first appointment with the surgeon was going to be 3 weeks away. So I contact the G.I. specialist that was her admitting doctors for the children’s hospital. I was advised that since we had not been seen in their office and only in the hospital, we were not patients and that there was nothing they could do for us.
I contacted the children’s office out of extreme desperation due to her pain. I was advised to bring her back to the emergency room to be evaluated. She was readmitted due to her liver enzymes were elevated and for pain control.
At this time she was seen by a different G.I. specialist, who believe that the viral non-infections hepatitis was due to her gallbladder. Our G.I. specialist contacted the surgeon on call to visit our daughter for another evaluation. This surgeon stated that he did not believe she was having gallbladder attacks because she was not presenting as a patient who would be in having a gallbladder attack would be. Finally with our new G.I. specialist requested him to do a laperscopic procedure to see if this could be the cause of her hepatitis and pain.
After surgery, the surgeon stated that her gallbladder needed to be removed because it was very hard and was dying. After surgery, she did very well and it took the entire summer to recover due to the viral non-infectious hepatitis.
She was fine for six months. Then four days before her 12th birthday she got very ill. She had the same problem but without her gallbladder. She was readmitted to the children’s hospital due to elevate liver enzymes. On her 12th birthday they had scheduled five biopsies of her liver, stomach, and throat. After the procedure, she awoke with more sever pain. On Halloween they scheduled an endoscopy procedure. They found a gal-stone in her common bile duct. After they took it out they said she could go home and she would be okay. It took another week and half before we could be discharged due to the amount of pain she was in.
We went home after 21 days in the hospital and she did not want to eat anything because every time she ate she would end up in excruciating pain. We were in and out of the emergency room, but everything kept coming back negative. She stayed on our couch for a month an a half not wanting to move because it hurt so bad. Then suddenly it just stopped one day. Then 2 weeks later she had all the symptoms again. Her G.I. specialist referred her to in December 2006, Columbus, Ohio. He basically told us she had I. B. S. and sent us home. A month later she had a colonoscopy which came back negative.
Still in pain our G.I. specalist referred us to Indiana University Hospital and Riley Children’s Hospital in Indianapolis, Indiana.
April 10th, a MRCP test was performed and we meet with Dr. Fogel a half an hour of this test. He then told us that our daughter had a very rare pancreas disorder called pancreas divisum. He explained that your pancreas has 2 openings where it releases enzymes to help digest food. Well, our daughter only has one small opening, so the enzymes are backing up into her pancreas and causing scaring and there for causing her to have to have chronic pancreatitis. He also told us that she was born with this and would have to learn to live with the pain. She is constantly in pain.
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Junior Member
Registered: 09-01-08
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I have a 5 year old daughter with special needs specifically she is undiagnosed. See her at www.mysnugly.com She has many anomomalies such as short stature, microcephaly, tapered fingers, small hands and feet. I was hoping this posting here would help us find a dx for her. Her name is Bethany. |
Junior Member
Location: By the Gulf
Registered: 09-08-08
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mother of two1 you said: quote: my 13 year old daughter bleeds from her salivary glands twice a day. No doctor has figured out why she bleeds or how to stop it. this has been going on since Oct. 2007. any help would be great --all tests come back normal.
Has anyone checked her for Trichinosis? It can cause bleeding from under tounge and around salivary glands. |
Junior Member
Registered: 09-09-08
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quote: Originally posted by masondixiechix:
Our 12-year-old daughter began complaining about stomach aches ever since she could talk, so we just increased her fiber and she was fine for a while up until a year and a half ago. On May 4th, 2006, she just had an adjustment of her braces and dad and I took her out Friday night to eat fish at a famous local restaurant. We were told that for the next couple of days Taylor would not feel like eating due to the adjustments made to her braces. Saturday she awoke not feeling the best with flu like symptoms. We just returned from her first 4-h meeting and she was complaining of a slight stomachache. After we returned home, she was still not feeling the best. We were relaxing when suddenly she starts screaming and trying to get comfortable. So I took her to our local emergency room and they ran some tests which came back normal. After giving her some morphine they sent us home. The next day we had the same problem. We went back to the emergency room. This time we had a different doctor and he asked us if the other doctors told us that they found sludge in her gallbladder, and her liver and pancreas enzymes were high. Then he told us that the gallbladder needed to be removed and she needed to be admitted to a childrens’ hospital. So she was transferred to the closest children’s hospital, 45 minutes away in the next largest town. She was there a total of 15 days due to her liver enzymes were elevated in the hundreds and was diagnosis with viral non-infectious hepatitis. She was discharged for the Memorial Day weekend still in sever pain.
I was instructed to contact a surgeon regarding her gallbladder once the weekend was over. I waited 4 long days to contact the surgeon. The first appointment with the surgeon was going to be 3 weeks away. So I contact the G.I. specialist that was her admitting doctors for the children’s hospital. I was advised that since we had not been seen in their office and only in the hospital, we were not patients and that there was nothing they could do for us.
I contacted the children’s office out of extreme desperation due to her pain. I was advised to bring her back to the emergency room to be evaluated. She was readmitted due to her liver enzymes were elevated and for pain control.
At this time she was seen by a different G.I. specialist, who believe that the viral non-infections hepatitis was due to her gallbladder. Our G.I. specialist contacted the surgeon on call to visit our daughter for another evaluation. This surgeon stated that he did not believe she was having gallbladder attacks because she was not presenting as a patient who would be in having a gallbladder attack would be. Finally with our new G.I. specialist requested him to do a laperscopic procedure to see if this could be the cause of her hepatitis and pain.
After surgery, the surgeon stated that her gallbladder needed to be removed because it was very hard and was dying. After surgery, she did very well and it took the entire summer to recover due to the viral non-infectious hepatitis.
She was fine for six months. Then four days before her 12th birthday she got very ill. She had the same problem but without her gallbladder. She was readmitted to the children’s hospital due to elevate liver enzymes. On her 12th birthday they had scheduled five biopsies of her liver, stomach, and throat. After the procedure, she awoke with more sever pain. On Halloween they scheduled an endoscopy procedure. They found a gal-stone in her common bile duct. After they took it out they said she could go home and she would be okay. It took another week and half before we could be discharged due to the amount of pain she was in.
We went home after 21 days in the hospital and she did not want to eat anything because every time she ate she would end up in excruciating pain. We were in and out of the emergency room, but everything kept coming back negative. She stayed on our couch for a month an a half not wanting to move because it hurt so bad. Then suddenly it just stopped one day. Then 2 weeks later she had all the symptoms again. Her G.I. specialist referred her to in December 2006, Columbus, Ohio. He basically told us she had I. B. S. and sent us home. A month later she had a colonoscopy which came back negative.
Still in pain our G.I. specalist referred us to Indiana University Hospital and Riley Children’s Hospital in Indianapolis, Indiana.
April 10th, a MRCP test was performed and we meet with Dr. Fogel a half an hour of this test. He then told us that our daughter had a very rare pancreas disorder called pancreas divisum. He explained that your pancreas has 2 openings where it releases enzymes to help digest food. Well, our daughter only has one small opening, so the enzymes are backing up into her pancreas and causing scaring and there for causing her to have to have chronic pancreatitis. He also told us that she was born with this and would have to learn to live with the pain. She is constantly in pain.
Hi, I am not sure if it is the same thing but I was diagnosed with Vocal Chord Disfunction. It is when the vocal chords shut when they are supposed to be open. You still get oxygen but it can happen in many different ways. For months before I was diagnosed, I would have attacks and thought I was having an asthma attack but my inhaler wouldn't work. I would struggle to breathe and my throat would spasm until I passed out and then I was fine. Other times the attacks would be so bad that I would end up in the ER. The way its diagnosed is through a scope that is passed through the nose into the throat and the doctor can see the vocal chords closing at the wrong time. For me the cause is a complication from severe acid reflux disease. I didn't find that out for another 4 years but I did find relief by going to a speech pathologist and there were breathing exercises that helped so that the attacks were less frequent. Another time, which sounds more like what you are having, I couldn't get a deep breathe no matter how hard I tried and this was a constant spasm. I went to the doctor again and they confirmed that it was VCD. Since I have recently been diagnosed with Acid reflux disease/Barrets esophagus and put on medication I haven't had an another attack. I hope this helps! |
Junior Member
Registered: 09-09-08
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Hello.I am new to this site and my case has been an unsolved mystery for 16 yrs. now.I have this problem getting a full deep breath.Sometimes i can't and sometimes i can.But in between those breaths i feel suffocated and hungry for air.Some doctors want to rule out anxiety and that it's all in my head!I'm not crazy.For a month now it has been 24/7 non stop and i'm losing my mind!!Please...can anyone help??
Hi MyOwnPrison,
I am not sure if it is the same thing but I was diagnosed with Vocal Chord Disfunction. It is when the vocal chords shut when they are supposed to be open. You still get oxygen but it can happen in many different ways. For months before I was diagnosed, I would have attacks and thought I was having an asthma attack but my inhaler wouldn't work. I would struggle to breathe and my throat would spasm until I passed out and then I was fine. Other times the attacks would be so bad that I would end up in the ER. The way its diagnosed is through a scope that is passed through the nose into the throat and the doctor can see the vocal chords closing at the wrong time. For me the cause is a complication from severe acid reflux disease. I didn't find that out for another 4 years but I did find relief by going to a speech pathologist and there were breathing exercises that helped so that the attacks were less frequent. Another time, which sounds more like what you are having, I couldn't get a deep breathe no matter how hard I tried and this was a constant spasm. I went to the doctor again and they confirmed that it was VCD. Since I have recently been diagnosed with Acid reflux disease/Barrets esophagus and put on medication I haven't had an another attack. I hope this helps!
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Junior Member
Registered: 09-09-08
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quote: Originally posted by kjc1385:
[QUOTE]Originally posted by masondixiechix:
Our 12-year-old daughter began complaining about stomach aches ever since she could talk, so we just increased her fiber and she was fine for a while up until a year and a half ago. On May 4th, 2006, she just had an adjustment of her braces and dad and I took her out Friday night to eat fish at a famous local restaurant. We were told that for the next couple of days Taylor would not feel like eating due to the adjustments made to her braces. Saturday she awoke not feeling the best with flu like symptoms. We just returned from her first 4-h meeting and she was complaining of a slight stomachache. After we returned home, she was still not feeling the best. We were relaxing when suddenly she starts screaming and trying to get comfortable. So I took her to our local emergency room and they ran some tests which came back normal. After giving her some morphine they sent us home. The next day we had the same problem. We went back to the emergency room. This time we had a different doctor and he asked us if the other doctors told us that they found sludge in her gallbladder, and her liver and pancreas enzymes were high. Then he told us that the gallbladder needed to be removed and she needed to be admitted to a childrens’ hospital. So she was transferred to the closest children’s hospital, 45 minutes away in the next largest town. She was there a total of 15 days due to her liver enzymes were elevated in the hundreds and was diagnosis with viral non-infectious hepatitis. She was discharged for the Memorial Day weekend still in sever pain.
I was instructed to contact a surgeon regarding her gallbladder once the weekend was over. I waited 4 long days to contact the surgeon. The first appointment with the surgeon was going to be 3 weeks away. So I contact the G.I. specialist that was her admitting doctors for the children’s hospital. I was advised that since we had not been seen in their office and only in the hospital, we were not patients and that there was nothing they could do for us.
I contacted the children’s office out of extreme desperation due to her pain. I was advised to bring her back to the emergency room to be evaluated. She was readmitted due to her liver enzymes were elevated and for pain control.
At this time she was seen by a different G.I. specialist, who believe that the viral non-infections hepatitis was due to her gallbladder. Our G.I. specialist contacted the surgeon on call to visit our daughter for another evaluation. This surgeon stated that he did not believe she was having gallbladder attacks because she was not presenting as a patient who would be in having a gallbladder attack would be. Finally with our new G.I. specialist requested him to do a laperscopic procedure to see if this could be the cause of her hepatitis and pain.
After surgery, the surgeon stated that her gallbladder needed to be removed because it was very hard and was dying. After surgery, she did very well and it took the entire summer to recover due to the viral non-infectious hepatitis.
She was fine for six months. Then four days before her 12th birthday she got very ill. She had the same problem but without her gallbladder. She was readmitted to the children’s hospital due to elevate liver enzymes. On her 12th birthday they had scheduled five biopsies of her liver, stomach, and throat. After the procedure, she awoke with more sever pain. On Halloween they scheduled an endoscopy procedure. They found a gal-stone in her common bile duct. After they took it out they said she could go home and she would be okay. It took another week and half before we could be discharged due to the amount of pain she was in.
We went home after 21 days in the hospital and she did not want to eat anything because every time she ate she would end up in excruciating pain. We were in and out of the emergency room, but everything kept coming back negative. She stayed on our couch for a month an a half not wanting to move because it hurt so bad. Then suddenly it just stopped one day. Then 2 weeks later she had all the symptoms again. Her G.I. specialist referred her to in December 2006, Columbus, Ohio. He basically told us she had I. B. S. and sent us home. A month later she had a colonoscopy which came back negative.
Still in pain our G.I. specalist referred us to Indiana University Hospital and Riley Children’s Hospital in Indianapolis, Indiana.
April 10th, a MRCP test was performed and we meet with Dr. Fogel a half an hour of this test. He then told us that our daughter had a very rare pancreas disorder called pancreas divisum. He explained that your pancreas has 2 openings where it releases enzymes to help digest food. Well, our daughter only has one small opening, so the enzymes are backing up into her pancreas and causing scaring and there for causing her to have to have chronic pancreatitis. He also told us that she was born with this and would have to learn to live with the pain. She is constantly in pain.
Hi, I'm sorry for posting to you...I replied to you by mistake. Please diregard the post. Good luck. |
Junior Member
Registered: 09-09-08
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My hands and feet are constanting swollen (bloated). On two seperate occassions my hands from the elbows down and my feet from the knees down swelled up to the point my skin felt like it was going to burst. I could actually feel a heat sensation as my legs and arms began to swell up. This went away on it's own after a few hours. All my medical tests come back normal. I've been to a specialist as well. My doctor's are stumped and seem to have given up. We have tried thyroid medication and water pills and neither help with the constant bloating. Has anyone had these kind of symptoms?
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Junior Member
Registered: 09-11-08
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This is for Holly, whose screen name is Rachsmom. I was looking through the posts and came across yours. Your daughter sounds like she may have a heart problem.
Have you gotten any other responses for your post yet? I'm a heart patient and didn't even know I had any heart trouble.
Please reply and let me know how your daughter is doing.
Thanks,
Carol
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Junior Member
Registered: 09-11-08
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[QUOTE]Originally posted by RachSMom:
My name is Holly.
My daughter was born and after complications during delivery, she was in the NICU for a short time. Since then, it has been one long rollercoaster ride and without any answers.
Her name is Rachel.
She will be 16 at the end of the year. Over the years, she has seen hundreds of Doctor's and Specialist and none of them have been to give us any answers.
Rachel health follows a distinct pattern #1 at her worst followed by #2 an in between phase then she's at #3 at her best and next comes #4 her downhill phase. After that it starts all over.
When she is at her worst, she runs a fever of around 103. She can barely move. Over the years, I have learned that the only thing that keeps the fever from going too high is liquid Motrin. I work on keeping her hydrated and help her go to the bathroom. She mostly sleeps the clock around. Doctors have run tests for illness but they can never find anything.
After her fever breaks, She develops pockets of fluid just under the skin that are visible. They look like bumps. She is weak and often injures herself from trying to do too much. Doctors try talk me into allowing her to go through drainage procedures. Once I allowed them to do it but it did more harm than good. At this point blood and urine tests have shown abnormalities.
Next the fluid drains away on its own. Doctors rerun the tests that had abnormal results but this time they come back normal. She is still weak but she is more alert and upbeat.
She heads downhill and fast during this stage. Her muscle knot up. She is in considerable pain. She refuses pain meds. She would rather bite her lower lip and try to cover up that anything is wrong.
Over the years, it has affected her lungs. In Janurary 2008, she began to get worse. She lost her peripheal vision. During periods of rest, which are frequent because she tires easily, her heart rate would speed up and she would black out. She has been sent to even more Doctors and Specialists and undergone more tests. I worry that she won't be able to survive to graduate from High School. She just started her Freshman Year. I do all that I can for her but it seems that it just isn't enough.
We are still looking for answers.
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Junior Member
Registered: 09-11-08
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Holly and everyone.
I'm sorry that the 2nd post has posted already! I haven't posted before tonight, so I'm still kind of learning!
I used to pass out and it turned out that I needed a pacemaker! It has really made a difference!!!
I have other stuff going on too, but I wanted to appologise for my mistake!
Thanks,
Carol
klokie60@aol.com
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Junior Member
Registered: 06-12-08
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HI! My name is Ashley.I need help. 7 years ago, when I was 15 I developed severe joint pain throughout my body.None of my doctors believe how bad the pain is. I can be fine one day and the next in so much pain I am crying. I have been many different pain killers, through out the years. Whenever I get sick, with an infection, I do not run a fever, and my blood counts do not rise. In fact one time i had a life threating infection, but nobody believed me for the first week I was sick.My normal body temp is 97.2, so when I feel feverish my temp is only 98.6. I was told I had Fibromyalgia but I do not believe that diagnosis. I only match the tender points and have a chronic sore throat, but also swollen glands in my neck. I also itch all the time, and stardard blood tests haven't revealed anything. I do not tire easily, or anything.I can swim miles at a time. My GP is at a loss to help me, and i keep begging him to refer me to new Rhuematologist, because my last one said he couldn't help me but wouldn't refer me anywhere. In fact he refused to even concider an underlying infection causing my pain. I don't know what to do anymore. When I was 15 my doctors told me I had at one time been exposed to the Parvo-B19 virus, but they said they couldn't help me, that the virus would go away on its own. I need answers, I am graduating from college in December, and I will be loosing my health insurance. I live in a area that does not have many medical providers.The last time I saw my GP he promised to send my records to some doctors, but I learned later on he never did that. Does anybody have any ideas? what can I do, I have seen multiple Primary Care doctors.I can be contacted at this email.
swimgirl162003@yahoo.com
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Junior Member
Registered: 09-15-08
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When I was 22 I had just had my second baby, all went well. Less that a year later I began to lose weight and started to get back to "normal". I soon began to have other things to go on. I had night sweats, fatigue, itching, weight loss, insomnia, pain in my bones and many other things. I had gone to several doctors over a year or so. I went to the ER and they pretty much brushed me off. No one ever did a blood test or anything. I was told everything from "you may have body lice" to "it's all in your head". I finally was scheduled to see my OBGYN for my yearly physical. He did his exam and asked me if there was any questions and so I began to tell him my symptoms and I showed him this huge lump in my groin area. He told me to keep an eye on it and come back if there were any new symptoms or if it got any larger. It got larger and so I went back. He then scheduled me to see a surgeon. She gave me a couple of options, I could either have the fluid biopsied or have the entire lymphnode removed. I chose to have it removed. I waited a couple of days and she called and told me to come in and have some support person with me. I was happy and scared to death at the same time. I was told that I had Hodgkins Lymphoma. I didn't even know what that was. She said "You have cancer". I held it togehter long enough to get my referal to the oncologist and go out to the parking lot, then I lost it. I didn't want to leave my babies with no mommy. I was crushed. So I met with the Oncologist and asked him what I had to do to get rid of it. He was awesome. He told me that I would have to have chemo and then we would go from there. In six months of treatment he reexamined my case and told me that my cancer was gone, only 2 days before Thanksgiving. What a thing to be thankful for. I am forever greatful for the three doctors that treated me. Dr. George Nowacek OBGYN, Lisa Farmer Surgeon, and Kenneth Deaton Oncologist!
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Junior Member
Registered: 09-15-08
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I'm new to this and no quite sure how this works. My daughter has been having what has been diagnosed as IBS. It seems no matter what she does nothing helps her. Ever since she was little she's been like this. No doctor seems to really care. Her scopes come back normal. She has pain and spends hours on the toilet everyday. When she was in school she missed lots of school and now misses work because of it. She's afraid to eat anything because of having to go to the bathroom. She always feels sick in her stomach. It seems her attacks are worse in the middle of the night or in the morning. It breaks my heart to see her crying with such pain. She begs me to help her, but I'm clueless as what to do. She takes Lactaid pills all the time because she thinks maybe that's part of the problem. It seemed to help a tiny bit. She's always taking Mylanta or Pepto. I just saw a program about a lady that had the bathroom issues like my daughter. She was told she had Pernicious Anemia. I wonder if this could be my daughters problem. She's only 18, but has had this all her life. How do we get a doctor to test her for Pernicious Anemia? Is there a good doctor in PA that we could take her to? Thanks for any help!
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Junior Member
Registered: 09-15-08
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My dad called me this morning. He was watching a rerun episode and said that I may have Pericous Anima. Funny, because my symptoms could be just about anything. But I was looking at the posts and saw yours. I have a "Spot" on the pons of my brainstem. It may be causing my problems, but may not. Because of it's location - I will never know. The thing hasn't grown in a few years so most doctors say that it probably isn't causing this. I have horrible migraines as well. You said that your mother falls. Is she off-balance (Ataxia)? I walk like a drunk. I am taking prednisone to ease some of the balance issues. But now I am slowly falling apart because of that. Numerous test have shown nothing. Makes me think that it has to be the spot. Sometimes I don't want to wake up in the morning, but God has his own schedule. I hope you find the answers you are looking for. quote: Originally posted by NeedAnswers:
I am just beginning to research my mothers condition as it is getting worse almost daily now.
1.) I know she has had debilitating migraines since she was a teenager. These never have been tiny headaches, they would lay her up for days if not over a week.
2.) 5 years ago she had an MRI and they found a Meningioma tumor in her brain. The doctors have always said it should be left alone as it isn't cancerous and most likely will not hurt her.
3.) To try and relieve migraines as well as other issues she was having they did a hysterectomy.
4.) Over the last year my mothers headaches have progressed and she has started to have seizures when she throws up.
5.) There have not been any doctors up here who seem to understand what may be going on with her. The frequency of these episodes has increased so much so I am worried she may end up having a seizure while driving. She has fallen hard enough to put holes in the wall and leave massive bruises on her body.
CAN ANYONE point me in the right direction? A good Neurologist or otherwise that may actually be able to get to the bottom of this?
Thanks a bundle!!! :0)
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Junior Member
Registered: 09-15-08
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Has she been checked out for Interstitial Cystitis? This is Painful Bladder Syndrome. Just a thought.... quote: Originally posted by tanzy:
I'm new to this and no quite sure how this works. My daughter has been having what has been diagnosed as IBS. It seems no matter what she does nothing helps her. Ever since she was little she's been like this. No doctor seems to really care. Her scopes come back normal. She has pain and spends hours on the toilet everyday. When she was in school she missed lots of school and now misses work because of it. She's afraid to eat anything because of having to go to the bathroom. She always feels sick in her stomach. It seems her attacks are worse in the middle of the night or in the morning. It breaks my heart to see her crying with such pain. She begs me to help her, but I'm clueless as what to do. She takes Lactaid pills all the time because she thinks maybe that's part of the problem. It seemed to help a tiny bit. She's always taking Mylanta or Pepto. I just saw a program about a lady that had the bathroom issues like my daughter. She was told she had Pernicious Anemia. I wonder if this could be my daughters problem. She's only 18, but has had this all her life. How do we get a doctor to test her for Pernicious Anemia? Is there a good doctor in PA that we could take her to? Thanks for any help!
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Junior Member
Registered: 09-16-08
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How well do you tolerate heat? It sounds as though you may have a dysautonomia, either orthosatic hypotension or postural orthostatic tachycardia syndrom (POTS). You would have to have a cardiologists do a Tilt Table Study. This would confirm the diagnosis. Be careful, though, there are very, very few drs that know how to treat it. What happens is that your blood is pooling and when you stand it should flow thru your body, but it is now quite sure which way to go, so it shoots for the feet and you get very dizzy and can pass out. Drink lots of ice cold water. This will help keep your blood pressure up. You can also have your doc check your bp while sitting and then have them check it 2-3 times while you are standing if you are dropping more than 20-40 pts that is a pretty good indication. quote: Originally posted by Janie H:
I am 25 yrs old and have been at the doctors for almost a year. They don't know what I have I am tired of test after tests. My symptoms are weakness to both legs, unable to walk,run,dance,jump, I sit for more that 10 min. and I have to stretch my legs becuase I feel tightning. I walk as if I am drunk and I don't drink, I get dizzy, my hands have a tremor. I basically need to know why I can't walk right. My right foot drags sometimes and I am always falling down. Doctors have done MRI of my spine brain, x-rays of my hips, nerve ending studies and everything is NORMAL. So what is wrong? I just recently found and old friend of mine who is in her earyly 40's and she has the SAME SYMPTOMS! Also, no doctor can figure out what is wrong. Anyone with anything familiar please HELP!
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Junior Member
Registered: 09-16-08
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If you can, get her to Dr. Laurence Kennedy at Shands/UF Hospital in Gainesville. He is the Chief of Endo and Head Professor. It sounds like she either has PCOS or maybe a form of Cushing's disease. If you need any info, you may contact me. kerrdiane@hotmail.comquote: Originally posted by TTFN10000:
PLEASE HELP OUR 9 YR OLD DAUGHTER.....
UNEXPLAINED WEIGHT GAIN ETC
At age 9 (turned 9 in Sept 07) my daughter weighs 181 lbs, the unexplained weight gain is baffeling.
In 10/2005 she was 105 lbs and now at the present date 5/16/08 she is 181 lbs
Pediatrician & Endocrinolgist don't believe it is nothing more then eatting and its not. They assume because I am heavy now that I was heavy all my life which is NOT TRUE
She is also very tall for her age at age 9 and only in 3rd grade is almost 5'0" and wears a size 9 shoe
SOME INFORMATION
March 2007 Bone Age Said 6 months Ahead Of Age
August 2007 St Joesphs Childrens Hospital Tampa, Fl
* Bone Age Is 3 YEARS ahead of age
* CBC Normal
* Folicles on Ovary
As Of 03/2008 Community Hospital New Port Richey Florida (Unexplained Throwing Up And Pain)
* Thyroid High
* Cyst On Ovary
* Lyph Nodes A Little Enlarged
As of now she is so depressed of her size she has Aneixty which she takes Lexapro once daily and also takes Prevacid for Gastritis of Stomach
She also Suffers from Gastritis Of Stomach And Mild Asthma
I have Suffered from PCOS and she has symptoms of it as well, she is also going into EARLY PUBERTY
Our daughter was always a tall child and ahead of most babies her age. She also did however stop napping at age 1 and also had trouble and still has trouble sleeping we have stopped the sleep meds.
She needs help but NO ONE HERE IN FLORIDA UNDERSTANDS.
PLEASE HELP US
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Junior Member
Registered: 09-16-08
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Desperate to find out what I have. It all started
April 2007 with twitches and tingling in my chin and lips. Then with extreme painful charlie horses in both legs. After the charlie horses went away I was left with the crawling sensations all over my body and muscles popping constantly. The first doctor I went to thought it was an electrolyte defenciency which came back neg. Was referred to a Neurologist in JUne 2007 and he said oh it must be a virus so give it another 2 months. By now I was in severe pain all over and fatigued. Went to another doctor and did a series of more tests and nothing positive came of them. She thought maybe Fibromyalgia and referred me to a Rhumetologist. She said I did not have all the points of pain to diagnois it as that and just said it could be on set of a disease later on in life. So I was given pain killers, Neurontin, Cyclobenzophrine for all these symptons that won't go away. After a year and half I really would like to know what I suffer from. My symptons include:
Severe Fatigue with surges of fatigue daily
Severe Pain all over and hot spots of pain.
Muscle popping or could be nerve popping all over.
Very sensitive to cold air-Brings onset of severe pain to the bone .
Bouts of breathing trouble especially in cold air settings.
Numbness all over.
Constant tingling in the lips and quivers and numbness in the chin.
Dizzy spells lasting 2-4 hrs. when they hit. Onset seems to be from rapid movement of flickering lights like in traffic and escalators.
Eye infection re-current only in the left eye for the past 5 months.
Severe headaches during sleep about 3 times a week.
Severe headaches from fast paced exercise or lifting heavy objects.
Get overly tired very easily and in chronic pain. So if it is not Fibromyalgia then I want to know what it is. For now I'm taking pain pills to give some relief to the pain but still very fatigue with dizzy spells and popping sensations all over. I need any advice and suggestions to what this maybe. Please Help! Thanks
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Junior Member
Location: belleville michigan
Registered: 09-17-08
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Im not good at computers but i do need some advise from anyone that has had fusions in the back. Ive been suffering with back pain for years and years since a teen. I was diagnosed with spina bifida occulta when i was 16. I had my first and only child at 23 that started the excrutiating low back pain that doesnt stop. I have degenerative disk disease arthritis and a buldging disc on my l5/s1 for the second time where the dr wants to take off another 15% of my disc thats on the nerve, if this is done the next alternative is a fusion with metal, which ive heard bad stories about. My problem besides that is no one can explain the pain in my leg groin and hip areas. Nothing on an x ray and so far nothing on mri. My one dr tested me for rhumetiod arthritis and said it was a neg. So what is causing the pain? My neurosurgeon hasnt come up with anything yet. Im tired of living in pain on pain killers and getting nerve blocks with cortisone and whatever nothing helps!!! Someone out there must know!!!
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Junior Member
Registered: 10-03-08
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I have a friend who is 22 years old and for about 20 months has been experiencing. She has constant shortness of breath, headaches, aching and weakness, these are symptoms that never go away. When she contracts an every day ailment she has the typical symptoms of that ailment times ten, and her own 'typical' symptoms also get much worse.
This is a person who competed on a high level in soccer and was the picture of fitness, all until one day she started having these symptoms that have left her unable to live a normal life.
NO doctor has an answer, they all seem to be content with being baffled and give up. We are unsure where to turn for help. Anyone who can give any sort of answers or a direction we may turn towards for some would be greatly appreciated. I may be reached at Caecus_Crux@live.com. I thank you in advance for any help you are able to give.
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Junior Member
Registered: 10-06-08
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Have you had her tested for Celiac disease? My cousin was diagnosed with it after many of the symptoms you ahve described at age 11. She ended up dropping out of school because 7 years ago there weren't a lot of treatment options nor was there much information. It basically revolves around an allergy to Gluten. It will require a total change in her diet, but if that is what it is she can get her life back. Good luck
tanzy
Junior Member
Registered: 09-15-08 Posted 09-15-08 03:21 AM I'm new to this and no quite sure how this works. My daughter has been having what has been diagnosed as IBS. It seems no matter what she does nothing helps her. Ever since she was little she's been like this. No doctor seems to really care. Her scopes come back normal. She has pain and spends hours on the toilet everyday. When she was in school she missed lots of school and now misses work because of it. She's afraid to eat anything because of having to go to the bathroom. She always feels sick in her stomach. It seems her attacks are worse in the middle of the night or in the morning. It breaks my heart to see her crying with such pain. She begs me to help her, but I'm clueless as what to do. She takes Lactaid pills all the time because she thinks maybe that's part of the problem. It seemed to help a tiny bit. She's always taking Mylanta or Pepto. I just saw a program about a lady that had the bathroom issues like my daughter. She was told she had Pernicious Anemia. I wonder if this could be my daughters problem. She's only 18, but has had this all her life. How do we get a doctor to test her for Pernicious Anemia? Is there a good doctor in PA that we could take her to? Thanks for any help!
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Junior Member
Registered: 10-06-08
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I am hoping that someone here can help me. I do not hold ot much hope, especially given the severity of some of the illnesses described here. But hoefully someone will read this who can tell me what is wrong with me.
I am a 29 year old female. I have been diagnosed with bi-polar disorder, keritosis pilaris [a skin disorder], fibromyalgia, migraines, IBS, chronic fatigue, PVC, and lately it was found that I am a carrier, and therefore a constant sufferer of the MRSA infection. In addition to these diagnosis I am also going blind. I am currently legally blind in my right eye and my vision gets worse every six months almost like clockwork. I was in bi-focals at the age of 25. My doctors don't know why I am going blind. I actually had a leader in her field tell me that she didn't know what was wrong with my eyes but sometimes these things just happen.
Every test I have ever had has come back normal. I have had unneccessary surgeries trying to figure out what is wrong. I have changed my diet, taken hundreds of medications, supplements, gone organic, everything that I was asked to do or that I thought might help with no result. I have asked for tests that no one would ever have thought of just trying to find an answer. And nothing.
The pain is the worst part. I am missing quality time with my infant son because I am so exhausted and in constant, gut wrenching pain. I cannot stand for my husband to touch me on good days and bad days even just brushing aainst something makes me scream.
It is not in my head. It cannot just be fibro. It is not a symptom of my depression. Right? I am desperate. I cannot live the rest of my life like this and I am terrified that whatever is wrong with me I have passed on to my son, because many of these symptoms started in my childhood.
Any help or insight would be greatly appreciated. Thank you very much.
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Junior Member
Registered: 05-03-07
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I am a mom of three. In November of last year my 2nd child was found to have high blood pressure. She isn't actually "diagnosed" as having high blood pressure. The only difference between before we started her on her medications is her blood pressure is normal, otherwise she is still the same. Except for polyuria (increased urine). She is insanely thirsty all the time. It seems that her left kidney is causing all the trouble, but since we do not have an actual diagnosis, I am a little scared. They sent us to Sick Kids Hospital in Toronto where they attempted a procedure with no success. I would greatly appreciate any insite or suggestions for this. It would be nice to know what she has in detail. She is only 2 and has apparently had high blood pressure since before birth. Hypertension doesn't even run in my family history.
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Junior Member
Registered: 10-14-08
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I really need your help... I am 25 year old female in the Army located at Ft Carson, CO. Two months prior to going to Iraq I ended up with this red streak covering my ankle and going down to my toe with extreme pain. Being a medic I waited to be seen cause I was checking it to make sure it wasn't hot to touch and checking to make sure it wasn't swelling. It never did I went in a week later around May 26 I went in to see our PA. The PA looked at it and said it didn't have the normal symptoms of celluitis but he thought that was what it was. The PA gave my a shot of antibiotics and I went back to work. That following Sunday the whole infected area was covered in huge blisters and was streaking up my leg. I went back in that Monday. It still was not swollen or really hot to touch. The PA said that he really didn't know what it was and sent me to see and Dermatologist. The Derm doctor said he thought it was a Staph infection. The area did not have any punctured areas. The derm Doctor put me on two antibiotics for thirty days. At this time I was put on crutches which the Derm doctor put me on due to the pain. A week later I went back in and the blisters finally were gone but the redness was still there and actually spread a little out side the line that the doctor drew on me. He was doing blood work weekly which were normal except that they said I was a little anemic. About a month in the redness still had not gone away the blood work came in and the white blood cell count had tripled it self. I was still on the antibiotics at this point almost done though and had not missed a pill at all. So the Derm sent me to Orthopedics and Internal Medicine. Internal Medicine said that they could not help me. Ortho put me on a splint and nuerotin. I started off and one and every three days I would work my up until I got up to 6 a day 300mg per pill. I have been tested for Phlebitis, blood clots and many other things. That have all come back negative. They did Doppler Ultrasounds, MRI's, Bone Scans, X-Rays, and occassional blood work. They have me on Mobic, Nuerotin (I'm up to 600mg five pills a day), Imitrex (due to the migraines I was getting), Prilosec, Percocets (which I only take when absolutly needed), sleep meds and laxitives. I have seen Derm, Ortho, Internal Meds, Podiatry, Chronic Pain, Derm up in Denver at the University Hospital, Neurology at the Air Force Academy, Vascular in Colorado Springs, CO., Physical Therapy (who won't touch me until this gets figured out), and I'm about to see Neurology up here at Fort Carson. The Vascular Doctor said the he didn't think he would find anything but decided on doing the Doppler Ultrasound just cause I had seen everyone else and he found out that I had Venous Insufficiency in my Staphenous vein. That was damaged all the way up to my proximal thigh. I just had surgery on that last Tuesday 7 Oct 08 they lasered off the part from the bottom of my knee up to near the pelvic area. I am still healing from that and none of the Doctors except my Vascular Doctor wants to see me until a month after my surgery. I still get the redness which has spread to my whole top foot at least monthly then it heals up again and turns that purplish color. I am still on the crutches with out the splint. Light weight bearing cause I still have a lot of pain in the inner ankle area and it shots up my leg. They are considering a Nerve Block in November. They still don't have a clue on what it is and my Venous Doctor says that whatever it is, it is causing damage. I am writing you cause all my friends says it is worth a try and I was just told that I will probably not be able to go to Iraq at all. I joined the Army to go to Iraq and be a Medic to our people out there. I am disappointed it the whole situation. I like that the doctors are being honest with me and telling me that they don't know what it is, and I know they have done what they can, but I feel that they could be doing something or send me else where. I was also told that they may just place a diagnose on me and medboard me which may get me out on a medical discharge but I don't want out at all. I understand that I have to accept things I just feel that there has to be someone who has seen this before and maybe there is a fix to it. So please if anyone has heard of this or know something I can do or try please e-mail me at ivysabrina2002@yahoo.com that you so much for taking your time to read this. Sabrina Hester
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Junior Member
Registered: 10-17-08
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I'm 18 years old, and for the past 3 months i've been in and out of doctor's offices, and eve the hospital.
A few months back i was on a plane from Germany back to the US when I felt a sudden vertigo, nausea, and white-ish blank spots fill my vision, I had passed out before from low blood sugar, so i just attributed to that, and ate something..yet I still felt very dizzy, disoriented, cold to the touch, and very pale. By the time we landed i was shaking all over and could barely walk.
After a few days of rest i got a little better, yet the vertigo came back, along with halted breathing and heart palpitations, and my Sinuses feeling so full they felt like they were bursting. I was taken to the ER and only diagnosed with a severe sinus infection. I was given antibiotics and sent home.
After another 3 weeks of no improvement, and continued episodes of these symptoms i was admitted to the hospital for observation. I had a spinal tap, MRI, cat scan, CT, vials upon vials of blood drawn and tested, and everything came back normal save for mild anemia, and mild heart palpitations. I was given a beta-blocker for my heart, nasal sprays for my sinuses, and sent home.
It's been a month and a half since then then, and the constants symptoms are pressure in my sinuses, temples, and head, extreme fatigue and muscle weakness, shortness of breath, heart palpitations, dizziness, and chest/face pains, and more recently moderately severe join and muscle pain/stiffness.
I have diagnosed with Meneir's disease, and allergies..but I can feel this isn't what it is, and I'm getting afraid and desperately to know what's wrong. I have a history of bronchitis every few months or so, and an episode of weakness/joint pains a year or so back, and had my gallbladder and appendix removed at the beginning of the year.
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Junior Member
Registered: 10-24-08
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I am posting this on behalf of my mother. Almost two years ago, she developed a very itchy rash that doctors and dermatologists cannot diagnose. We have ruled out so many things -- detergent, clothing, etc... -- and she has gone to several doctors, determatologists and specialists, had blood tests, had the rash biopsied, etc... -- and still no seems to know what it is or how to cure it. Not only that, but her symptoms are now getting much worse -- the worst part of her rash is from her shins down on both legs and over the last few months, she says she cannot stand because of a burning sensation in her ankles and feet. What is scary is that this women -- a year ago -- was healthly except for this rash. Now, she is basically confined to the couch because she cannot walk, still has the rash which she scratches constantly, is very cold all the time and just developed vertigo as well -- help!!!!
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Junior Member
Registered: 11-08-08
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I've had high ESR levels for over a year, which indicate inflammation. And for the past few months, I have had one white cell count that is high, indicating the same thing. I'm diagnosed with fibromyalgia. It's not a fun disease. It's tough to diagnose, but I am an extreme case, b/c of the inflammation. With fibro, you usually don't have inflammation. I've been to hem/onc, neuros, and it was my rheumatologist who diagnosed me. I just don't handle a lot of the medicines used to treat the condition that well.
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Junior Member
Registered: 11-15-08
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My daughter is 13yrs old and began having significantly similar issues in March 08 (12 yrs old at onset). She's never had ear ringing and Meniere's was ruled out at Mass Eye & Ear's Vestibular lab (one of only 6 in the country). She's had normal MRI and an earlier hearing loss from birth reversed itself. She is being followed by a Neurootolarnygologist who is in awe at the inability to determine what is causing her issues. She's officially diagnosed with Chronic Vertigo with Migrane tendancies. The vertigo can be debilitating causing her to miss days of school at a time.She was almost symptom free on prednisone for a week. Switched to Verapamil which helps with inflamation which was dc;d recently as it had no improvements. Her Lymphocyte & platelet counts are high and so is RGB (I think). Dr. says its signs of inflamation but no one can figure out where or why. Her MRI was normal, Rhumatologist found nothing significant and refered her to Optomology for a r/o of Uvietis. Her vision is 20/20 and they feel eyes are not a cause. we're dumbfounded. She has been getting strep and/or sinus infections frequently and is on a course of 20-day amocicilin. About 2 weeks after any of these infections (or ears) she has a real bad bout of the vertigo. Her IGG's & IGA levels are normal as is her white cell count. Any clues? Interested in any findings you've had. quote: Originaly posted by akfabry:
Our 11 year-old son was first diagnosed with Meniere's Disease 4 months ago when loud ringing appeared in his left ear. This was followed by acute onset of vertigo which left him unable to walk and constant nausea. He has had a shunt placed behind his left ear and 2 gentamycin injections. He is still experiencing constant vertigo. A second and third opinion suggest an "unexplained hearing loss" rather than Meniere's Disease. This is virtually unheard of in children. We have been unable to find a pediatric specialist in this. We have been told it will take many months for him to recover. We are looking for any other children with this and wondering how we can solve the "unexplained" mystery.
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Junior Member
Registered: 11-15-08
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SO I would say for the past 5-7 years I have had extreme abdominal pain. My doctors have prescribed every pain killer there is and nothing works. I also get a fairly high fever with these episodes. I'm a 19 year old female and I have never had a period of any kind. Recently I have been having some bouts of extreme vertigo and headaches. All my hormone levels are in good shape. What could be wrong?
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Junior Member
Registered: 12-29-08
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I am 17 and i will be 18 in july. i am a junior this year. but since about october 2007 i had consitant wrist pain in my left wrist. i went to several doctors no one could figure it out. then in about december that same year it went a way. i was relieve thinking it was all over. but that wasnt all. in january 2008 i got the the wrist pain back but this time in my right wrist. and unfortunately still have it. i wore a brace to support it. it took some of the pain a way. but not all. i just thought it would stabilize it a little that it would help. my mom scheduled doctors appointments. they ran test and nothing.. all negative. i started my junior year in late august. and by mid september it got so bad i was complaining about writing and how it bothered me so much. i had to drop chemistry and algebra 2, and accounting. and so now i have to make the two main ones up in summer school. but thats not all. in april i also started havin knee pain. during the summer at times my knee felt like it was giving out either when i was walking or sitting and went to stand up. i had surgery in late october of this year, they did and orthoscopic surgery on my knee, and did and injection in my wrist. the injection helped i think for a while till recently when it started bothering me again, and the knee orthoscopic thing all came back negaitve. my mom did research on the internet and talked to someone she worked with and decided to try a gluten free diet. i have been trying my best though i admit it is hard, and i am not always consistent with it. i do have sleep problems at night where i either am up early and fall back asleep then it repeats, or i am up at say 4 and am up the rest of the day. at one point a doctor thought i was making it all up and it really frustrated me, then my dad said it to a doctor, then they thought i didnt like school and was trying to get out of having to go. which i will tell u this it may be strange, but i do actually kinda like school. but anyways. if u have any ideas or anyhting please please pliease let me know. i would really appreciate it!  |
Junior Member
Registered: 12-30-08
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What do you think I should do?
I have been sick for about 10 months now. I am not sure if all of my symptoms are related to one illness or a couple of different ones. I am 42 and have never had ANY health problems until now. It seems that each time I went to the Dr. they would send me for a test only to find something wrong that was unrelated to the symptoms I was bing checked for. My main pain and problem right now is that directly under my rib cage on the top of my stomach it has a constant sensation ther it feels as if the stomach is pushed or sucked in. It is so tight that I cannot take in a deep breath. There is a band that goes across that area also actually feels like I have a belt on. My thighs have an odd sensation as if clothing is on them just draped across. My legs feel akward to move them nd at times are heavy. I am not sure if these are connected. I started feelin a lump in my throat so they sent me for a barium swallow that showed things were indeed getting stuck there but there was no obstrusction so they did an endoscopy and colonoscopy to find that I have barret's esophagus and gerd. I have never had heartburn before. I just have an irritating feeling in throat below "adams apple" thing. As soon as I started getting the lump I started getting burning in the back of my throat and again below the adams apple thing as ewll as t he lump sensation. How did I all of a sudden start these symptoms bad enought that the gerd caused barret's? What does it mean to have gotten this quickly when barrett's should take a long time due to years of severe gerd which as I said I had never had until all of a sudden? Anyway the gerd thing is the least of my worries I can deal wit hthat I just ewonder if it may be caused by something else that might be related to the stomach thing. I get so tired and not just the sleepy tired but so weak that it is difficult for me to walk from one room to the other which is close by. I started gettting numb feelings in the letter C shape on the left side of my face only I have started having tremors in the first two fingers of both hands when I raise those two fingers they shake and it is getting worse. I went for an MRI and it showed just a protruding disk and that the spineal cord was curving out away from the disk. From what I understand the disk in thoracic area cannot affect the stomach in my section but I can't seem to find out if that is factual or not. I am at the end here my doctor says she will no longer discuss my back problem or stomach problem b ut that I can feel free to talk to her about other health issues. Please tell me what to do.
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Junior Member
Registered: 01-05-09
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Hi, aryam. I have had similar symptoms to yours, though not as extreme. The summer before I started my third year in marching band, I started to get very small hives on my ankles and I thought they were ant bites. Then, a couple of weeks before band camp I had hives on the insides of my wrists. They eventually covered my whole body and the sun, heat, and exercise of band camp made them spread so that they connected, burned, and turned blood red. When I got the first ones on my feet, I was in Michigan, the ones on my wrist were in Georgia in my house, and when they worsened, I was outside. I don't know what caused them, because the locations have different sets of allergens, but allergy test showed I was allergic to almost everything. I have asthma, too. I also have a myriad of other symptoms, "gray-outs" which twice led to fainting, IBS, and extreme anemia with low platelete counts, too name a few. I think I may have a form of mastocytosis. Thankfully, the medications, Allegra-D, Singulair, Nasonex, and Pulmicort help to keep my allergy symptoms at bay and I only get hives when I'm in the shower, but the go away quickly and don't leave what I call "hives scars." I am also on Zantac for the IBS. I have read that this is a treament of mastocytosis. Hopefully you go to an allergist and they can get your hives under control. Stress can cause or just exacerbate hives and asthma. And breathing in through your nose and out through your mouth during exercise may improve your asthma. If not, there are low-cardio exercises like yoga that will lower stress levels, build muscles, and help you lose weight. There is another possiblity, that you may be sensitive to an ingredient in alot of sports drinks called aspartame. It is also a perservative called aspartic acid which can be in alot of other things. It is bad for anyone, but terrible for those senstive to it. For the sensitive ones, it will mimic sympots of diseases such as MS or Lupus. I thought that maybe you were drinking a sports drink whenever you exercised or were in the sun. You can google both of these to read more about them. If your doctor isn't listening to you, get another one. Someone that will support you. I think I finally found one that wont prescribe anti-anxiety medicine when I tell them I think I may have mastocytosis. lol quote: Originally posted by aryam:
HELLO,
I JUST JOINED THE FORUM BECAUSE AS RECENT AS YESTERDAY I HAD AN EPISODE OF A RARE ALLERGY THAT I'VE BEEN HAVING SINCE I HAD LIKE 12 YEARS OF AGE, AND NOBODY SEEMS TO BE ABLE TO COME UP WITH A DIAGNOSIS. THE CLOSEST I'VE FOUND ON THE INTERNET IS "HEAT ANAPHYLAXIS"; AND THAT IS A CONDITION THAT AFFECTS MOSTLY ATHLETES, WHICH IS A CATEGORY I DON'T FIT PRECISELY DUE TO THIS ALLERGY. ALL I CAN SAY IS EVERY TIME I AM EXPOSED TO EXTREME HEAT OR MAKE ANY EXCERCISE, I START HAVING AN ALLERGIC REACTION THAT WEARS ME OUT: ITCHY, WATERY EYES AND NOSE, HIVES, MY HEART STARTS POUNDING VERY HARD, ALL MY BODY STARTS SWELLING UP FROM ALL THE HIVES GETTING MIXED WITH THE OTHER HIVES NEXT TO THEM, MY FACE SWELLS UP REALLY BAD, MY THROAT GETS SWOLLEN TO THE POINT THAT I CAN'T SPEAK, I CAN HARDLY BREATH AND START WHISTLING (LIKE ASTHMA, I HAVE TO TAKE RESPIRATORY THERAPY W/ALBUTEROL EVERY TIME THIS HAPPENS); I HAVE EVEN BLEED VAGINALLY WHEN I GET THIS ALLERGY, SEEMS LIKE MY INTERNAL ORGANS ALSO SWELL, AS WELL. IF I HAVE FOOD IN MY STOMACH, I WILL THROW UP.
THE GOOD SIDE IS I KNOW WHAT CAUSES IT, SO I JUST AVOID DOING EXCERCISE OR BEING IN THE HEAT; BUT THIS IS MORE THAN JUST THAT. IT KEEPS ME FROM LIVING A NORMAL LIFE, I CAN'T GO OUT AND PLAY WITH MY KIDS, CAN'T ENJOY A BEACH OR POOL FOR A LONG PERIOD OF TIME, ETC. LIKE OTHER PEOPLE IN THE FORUM, DOCTORS JUST DON'T SEEM TO TAKE IT SERIOUSLY; THEY APPARENTLY THINK I AM TRYING TO MAKE UP EXCUSES FOR NOT EXCERCISING. THIS HAS CAUSED ME TO BE VERY OVERWEIGHT (290). I AM 41 YRS NOW, AND MY METABOLISM SEEMS TO JUST HAVE STOPPED. I GOT TYPE 2 DIABETES AND IT'S NOT MUCH WHAT I CAN DO FOR EXCERCISE. THERE WERE 2 TIMES I HAD A C.B.C. DONE AND IT HAD COME OUT AS IF I HAD 8 CROSSES OF SIFILIS; WHEN I GO AND HAVE A SECOND TEST DONE, IT COMES OUT O.K. THIS HAVE MAKE ME THING THERE'S SOMETHIG WRONG WITH MY BLOOD, WHICH IS A+. I WENT TO A DR. WHO MADE ME A LUPUS TEST, WHICH CAME OUT NEGATIVE. MY UNCLE'S WIFE HAS LUPUS AND SHE TELLS ME SHE BELIEVES WHAT I HAVE IS A COLLAGEN CONDITION. I AM SO TIRED OF THIS AND AT SOME POINT SO FRIGHTENED MY SONS COULD GET THIS FROM ME, BUT THANKS GOD THEY ARE VERY NORMAL; ONLY MY YOUNGER SON IS BEING TREATED FOR WHAT THEY BELIEVE IS MIXED DEVELOPMENTAL DESORDER; BUT NONE OF THEM SEEMS TO BE AFFECTED BY EXPOSURE TO SUN OR HEAT OR EXCERCISE. THIS DEPRESSES ME VERY MUCH, I CANT EVEN CLEAN THE HOUSE WITHOUT HELP FROM SOMEBODY, I FEEL I AM A NUISANCE, CANT SEEM TO FIT IN ANYBODY'S PLANS AND RUIN EVERY TRIP WE GO DUE TO MY CONDITION. EVERYBODY GOES AND HAVE FUN AND I JUST CANT TO THIS, CANT DO THAT....IT'S REALLY DEPRESSING. PLEASE HELP ANYBODY! THANKS
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Junior Member
Registered: 01-06-09
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Hi everyone, I'm new to this system so I hope I'm doing this right and I hope some one can help! Here is my deal:
2 years ago: tingling/burning senstion in legs that would jump around my body (no one knows why, but ginger helps). Test also show that I have herpes 1 in my system which I knew because I've had cold sores since I was 5 years old.
Pain that feels like a blood pressure cuff is on left arm, along with that is sharp pain that runs right along the top of my left breast. (ER blood test shows that I have hight d-dimer test results (blood clots) but don't know where or why.) I've been test 3 times in 2 years and remain high.
1 year ago I started to gain weight in my stomach area only, I look pregnent and have pain on and off on my right side that radiates to the right back. All test come back normal. Since May 2008 I have gained 25 pounds. I was told to eat only 1300 calories and to walk 10 miles per day to see if that helped! I already walk about 5 miles per day but can't get the ten in.
8 months ago discovered my vitamin D was at 7, I was put on perscription vitamin D that I will take for the rest of my life. My Doctor also noticed that I never have a body temp over 97.7 but my blood pressue is good. They tested my thyroid and it's normal. She was going to put me on a natural hormone but the Doctor I saw for the blood clot test said no.
Achy joints now and my calves hurt and burn but walking helps. I've had every test from Cardio (stress test and blood) to MRI and the Dr.'s can't find anything. I'm 54 and have gone through menopause. My Dr. is trying and calls me her puzzle but I want to be solved. Does this sound familiar to anyone? If so, let me know. Thanks.
Debbie
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Junior Member
Registered: 01-13-09
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Since 2005, I have been battling mysterious systems and have been to various doctors. I have yet to have complete relief of my symptoms. The first thing that alarmed me was swelling in my joints, especially in my ankles. The swelling remains somewhat constant. It does get worse throughout the day though. In fact, my ankles swelled so badly that the bones were no longer visible in 2005. I also experienced gaining over 20 pounds within a month. I went to an endocrinologist and got temporary relief from Metformin, but eventually the Metformin led to me having diarrhea and vomiting. I have been checked for liver and kidney function as well as rheumatology problems. Among other tests, I have been tested for lyme disease, protein in my urine, and thyroid. Everything comes back normal except for a slightly elevated cortisol level. Any ideas of what could be plaguing me? I have switched primary care doctors. My new primary care doctor sent me to a different endocrinologist who said I have no problem with my endocrine system. I have been taken off the metformin. I sometimes appear to be "puffy" in face and in my joints still. I am grasping at straws to explain my weight gain and swelling. Also, when people touch my on my arms or my legs, it's like a sharp pain that happens. It takes me forever to heal when I cut myself. I usually eat meals that are fairly low fat and have been eating fruits and whole grain foods as a snacks. I exercise at least 4 times a week, and cannot lose weight. At times, my blood pressure appears to be elevated as well. Please, please, anyone who has an idea I would greatly appreciate it!
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Junior Member
Registered: 01-13-09
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Lets see if this works. I am a 52 yo male. Last June I had my blader seperated from my colon, they had grown together and hole had formed in both. Anyway surgery went well no problems during a week in hospital. About 10 days later I started running a high fever and stomach pain. Back in the hospital they found a large abscess in my lower abdomen. They aspirated it and gave me lots of IV's. Four days into this I had a huge problem, I could not breathe when I was on my back. It made me panic real bad first time. It's like all the air in my lungs goes out and I can not pull any air back into them when on my back. I can lay on my sides and get by with only a little bit of problem getting air. I have had all kinds of testing done and seen every type of doctor and no one knows whats wrong with me. As a last resort my Dr. sent me in for some PT thinking I need to build up stomach muscles. The problem with this is I can't feel those muscles. I can do 100 sit-ups and not feel anything. I don't get tired, sore and heart rate stays about the same. It's still the same...I can't lay on my back or lean back in chair without having breathing problems. Any ideas please let me know. chuckanddonnita@hotmail.com
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Junior Member
Registered: 01-22-09
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I'm 30 years old. I've had ongoing symptoms since 2003 that are worsening along with new symptoms. I've been to multiple doctors and had many tests done. Nobody seems to know what is wrong with me. It started with pain down my left arm and that would come and go. It felt like a cramp or squeezing type of pain. But since then my symptoms have gotten worse. Now I get pain in any limb and back pain and a burning pain that comes and goes and moves around my body. I also get headaches, and have chronic sinus congestion. I get dehydration, weakness, some numbness, some constipation, some urinary incontinence, memory loss, poor wound healing, pain in calf muscles, tinitus, and sometimes ear pain. All these symptoms are on top of the PCOS that I have already been diagnosed with. I am now beginning to get high blood pressure. The amount of pain and symptoms that I deal with along with the frustration of dealing with the doctors has made me become depressive as well. I watch the show thinking maybe one day someone like me will be on it and I'll finally have an answer. Until then each day I live in agony and hope it will be my last.
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Junior Member
Registered: 01-22-09
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The only thing I can think of is cushings disease. But I would have thought that the doctors would have been able to diagnose that if it was that. It could also be hypothyroidism, adrenal fatigue, or even fibromyalgia. Good luck. quote: Originally posted by molita28:
Since 2005, I have been battling mysterious systems and have been to various doctors. I have yet to have complete relief of my symptoms. The first thing that alarmed me was swelling in my joints, especially in my ankles. The swelling remains somewhat constant. It does get worse throughout the day though. In fact, my ankles swelled so badly that the bones were no longer visible in 2005. I also experienced gaining over 20 pounds within a month. I went to an endocrinologist and got temporary relief from Metformin, but eventually the Metformin led to me having diarrhea and vomiting. I have been checked for liver and kidney function as well as rheumatology problems. Among other tests, I have been tested for lyme disease, protein in my urine, and thyroid. Everything comes back normal except for a slightly elevated cortisol level. Any ideas of what could be plaguing me? I have switched primary care doctors. My new primary care doctor sent me to a different endocrinologist who said I have no problem with my endocrine system. I have been taken off the metformin. I sometimes appear to be "puffy" in face and in my joints still. I am grasping at straws to explain my weight gain and swelling. Also, when people touch my on my arms or my legs, it's like a sharp pain that happens. It takes me forever to heal when I cut myself. I usually eat meals that are fairly low fat and have been eating fruits and whole grain foods as a snacks. I exercise at least 4 times a week, and cannot lose weight. At times, my blood pressure appears to be elevated as well. Please, please, anyone who has an idea I would greatly appreciate it!
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Junior Member
Registered: 01-22-09
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Wow, some of you symptoms seem like mine. But, at least you were able to convince the doctors to test you more or do more diagnostics. I have to deal with military doctors and that is very frustrating. They only allow you to tell them like 2 symptoms at a time. If I could afford to pay out of pocket to have some tests done I would. Good luck. quote: Originally posted by dmadi:
Hi everyone, I'm new to this system so I hope I'm doing this right and I hope some one can help! Here is my deal:
2 years ago: tingling/burning senstion in legs that would jump around my body (no one knows why, but ginger helps). Test also show that I have herpes 1 in my system which I knew because I've had cold sores since I was 5 years old.
Pain that feels like a blood pressure cuff is on left arm, along with that is sharp pain that runs right along the top of my left breast. (ER blood test shows that I have hight d-dimer test results (blood clots) but don't know where or why.) I've been test 3 times in 2 years and remain high.
1 year ago I started to gain weight in my stomach area only, I look pregnent and have pain on and off on my right side that radiates to the right back. All test come back normal. Since May 2008 I have gained 25 pounds. I was told to eat only 1300 calories and to walk 10 miles per day to see if that helped! I already walk about 5 miles per day but can't get the ten in.
8 months ago discovered my vitamin D was at 7, I was put on perscription vitamin D that I will take for the rest of my life. My Doctor also noticed that I never have a body temp over 97.7 but my blood pressue is good. They tested my thyroid and it's normal. She was going to put me on a natural hormone but the Doctor I saw for the blood clot test said no.
Achy joints now and my calves hurt and burn but walking helps. I've had every test from Cardio (stress test and blood) to MRI and the Dr.'s can't find anything. I'm 54 and have gone through menopause. My Dr. is trying and calls me her puzzle but I want to be solved. Does this sound familiar to anyone? If so, let me know. Thanks.
Debbie
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Junior Member
Registered: 01-22-09
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No guarantees but worth a try...Your wrist pain may be caused by vitamin B deficiency I think B12. And for any joint pain try glucosamine with chondrotin and msm in it. good luck. quote: Originally posted by cute716: I am 17 and i will be 18 in july. i am a junior this year. but since about october 2007 i had consitant wrist pain in my left wrist. i went to several doctors no one could figure it out. then in about december that same year it went a way. i was relieve thinking it was all over. but that wasnt all. in january 2008 i got the the wrist pain back but this time in my right wrist. and unfortunately still have it. i wore a brace to support it. it took some of the pain a way. but not all. i just thought it would stabilize it a little that it would help. my mom scheduled doctors appointments. they ran test and nothing.. all negative. i started my junior year in late august. and by mid september it got so bad i was complaining about writing and how it bothered me so much. i had to drop chemistry and algebra 2, and accounting. and so now i have to make the two main ones up in summer school. but thats not all. in april i also started havin knee pain. during the summer at times my knee felt like it was giving out either when i was walking or sitting and went to stand up. i had surgery in late october of this year, they did and orthoscopic surgery on my knee, and did and injection in my wrist. the injection helped i think for a while till recently when it started bothering me again, and the knee orthoscopic thing all came back negaitve. my mom did research on the internet and talked to someone she worked with and decided to try a gluten free diet. i have been trying my best though i admit it is hard, and i am not always consistent with it. i do have sleep problems at night where i either am up early and fall back asleep then it repeats, or i am up at say 4 and am up the rest of the day. at one point a doctor thought i was making it all up and it really frustrated me, then my dad said it to a doctor, then they thought i didnt like school and was trying to get out of having to go. which i will tell u this it may be strange, but i do actually kinda like school. but anyways. if u have any ideas or anyhting please please pliease let me know. i would really appreciate it!
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Junior Member
Registered: 01-22-09
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Wow, no periods yet? Have the doctors done a CT Scan of your abdomen or an MRI of it maybe even an ultrasound? As for headaches they can be caused by so many things those are difficult to figure out the cause on but vertigo can be caused by an ear condition because your balancing mechanism is located in your ears. But you may also want to get a brain MRI. But hey at least the hormone levels look normal. Good luck. quote: Originally posted by mstangel:
SO I would say for the past 5-7 years I have had extreme abdominal pain. My doctors have prescribed every pain killer there is and nothing works. I also get a fairly high fever with these episodes. I'm a 19 year old female and I have never had a period of any kind. Recently I have been having some bouts of extreme vertigo and headaches. All my hormone levels are in good shape. What could be wrong?
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Junior Member
Registered: 01-22-09
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Have you ever had the air checked in your home? It could be something there causing symptoms. radon can cause lung cancer. Mold, much worse and you never know what is behind the walls or in the carpet or attic. Good luck. quote: Originally posted by insanedreamer:
I'm 18 years old, and for the past 3 months i've been in and out of doctor's offices, and eve the hospital.
A few months back i was on a plane from Germany back to the US when I felt a sudden vertigo, nausea, and white-ish blank spots fill my vision, I had passed out before from low blood sugar, so i just attributed to that, and ate something..yet I still felt very dizzy, disoriented, cold to the touch, and very pale. By the time we landed i was shaking all over and could barely walk.
After a few days of rest i got a little better, yet the vertigo came back, along with halted breathing and heart palpitations, and my Sinuses feeling so full they felt like they were bursting. I was taken to the ER and only diagnosed with a severe sinus infection. I was given antibiotics and sent home.
After another 3 weeks of no improvement, and continued episodes of these symptoms i was admitted to the hospital for observation. I had a spinal tap, MRI, cat scan, CT, vials upon vials of blood drawn and tested, and everything came back normal save for mild anemia, and mild heart palpitations. I was given a beta-blocker for my heart, nasal sprays for my sinuses, and sent home.
It's been a month and a half since then then, and the constants symptoms are pressure in my sinuses, temples, and head, extreme fatigue and muscle weakness, shortness of breath, heart palpitations, dizziness, and chest/face pains, and more recently moderately severe join and muscle pain/stiffness.
I have diagnosed with Meneir's disease, and allergies..but I can feel this isn't what it is, and I'm getting afraid and desperately to know what's wrong. I have a history of bronchitis every few months or so, and an episode of weakness/joint pains a year or so back, and had my gallbladder and appendix removed at the beginning of the year.
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Junior Member
Registered: 01-22-09
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My sister in law alwas has eaten anxiously and has a lot of activity, if she didn't eat, she was in a bad mood. Once the dentist told her to have a blood analysys and she was diagnosed with anemia. She was very worried and she went to the haematologist. She had this diagnosis for 2 years. The haematologist told her to take vitamins and iron supplements. For 6-8 months, her haemoglobine raised to 10 - 11 and then 11. When she left the pills, her haemoglobin dropped to 10. In 2008, in January, she began having back aches that became chronical, then the pain showed below her bust and the pain was acute. The doctor told her to have a liver and vesicle ecography. then she had pain and fever, and she fainted, the doctors thought it was the vesicle, but it wasn't. Then the doctor said it was miliary tuberculosis. She was told to take 11 pills a day, then she had an acute pain in her stomach, the doctors though it was apendicitis and she had x rays and she was told she had and intestine obstruction and it can possibly be that the tbc is expanding to the intestines. The last diagnosis the doctors say she has a cyst in her left ovary and she had the ca-125 test, whose result is of 99.26u-ml, result that, according to the doctors, can be cancer. We are very worried because she is well and then she gets sick, please help us to solve this mystery. Thank you.
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Junior Member
Registered: 01-25-09
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I NEED HELP ASAP. Someone, please anyone help me. My mother has been sick for over 4 years now and nobody can figure out what's wrong with her. She's been to over 30 doctors and has had over 50 tests done for anything you could think of. Every test she takes comes back good and shows that there's nothing wrong. My family has spend over $10,000 on doctor bills and still owe a couple thousand. It's heartbreaking to see her like this. Her symptoms are nausea, headaches, leg pain, she feels like she has a lump in her throat, she also says that she can feel fluid draining down her back and the right side of her body seems to be dryer than the other, she has bloating, she can only eat foods such as cookies, mashed potatoes, some chicken. She hasn't had a fruit or vegitable in over 4 years. She can't eat any peper because the little specs come back up in her mouth as well as steak and other types of meat: ham, turkey. She is unable to swallow foods as I mentioned which makes it really hard on her because she can't eat much at all. She also can't eat salad or anything along with it. I'm trying to find any sort of lead and get any help that I can get. It breaks my heart to see my mom like this. She gets mean spells where she can feel like she can kill somebody one minute and the text she's fine. Please anyone I'm asking for your help. Anything at all would mean so much to me. She's giving up hope and I don't really know what else to do. My e- mail address is aajacque@umd.umich.edu please e - mail me if you know of any possibilities. Not only am I asking, but my family as well we need your help and so does my mother. We are unable to keep spending thousands of dollars on doctor bills that are getting us nowhere. So please help us. Thank you very much.
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