Unexplained Weight Gain

I have been too many doctors and they cannot figure out what is wrong? I am told that I am getting close to 40. So, weight gain is normal. I need to eat less or I need to exercise more.
I am a runner, I have not been able to eat meat for at least a year (severe stomach cramps, diarrhea, nausea and sometimes vomiting), I can eat seafood and vegetables and I have 40 pounds of unexplained weight gain.
I have adenomyosis and VCD (Vocal Cord Dysfunction). I have not been on any new medicines for at least the last year. I do not eat much because I feel nauseous 24/7. I also feel full very quickly. I have been to the GI doctor and I am going to be getting an upper and lower GI. The doctor feels my GI concerns do not answer the unexplained weight gain. I hold water and am extremely fatigued.
I saw an episode of mysterious diagnosis where the woman had the same symptoms as I do. She had protein in her urine and I have both protein and blood in my urine. I do not remember what she was diagnosed with. I am feeling very frustrated. I KNOW something is wrong. I understand I am getting older but 40 pounds of weight gain? I have gone up 8% in body fat in 4 months that is not normal. Anyone have any ideas or knows the name of the diagnosis of the woman? I wish I would have written it down.

Hey everyone, I truly feel that this type of forum can help a lot of people, and there is no reason why so many people should be suffering from a lack of diagnosis or a misdiagnosis with todays instant access to information and networking through the internet. People with unanswered questions regarding their health should get together and help each other out by sharing their stories and experiences with one another through a social network. This is exactly why I created MedicalMysteryTour.com specifically for those who are searching for a medical diagnosis. I hope to see you there!

I'm sorry to hear about your son...hearing troubles and vertigo are horrible at any age. There is a pedicatric otolaryngolist in Boston, MA who has not ceased in trying to help me find an answer to my chronic vertigo. He is associated with Boston Children's Hospital. His name is Dr. Quinton Gopen and he has been the first and only doctor in literally four states who has not given up in trying to diagnose why I've had vertigo for 4 years now. (I'm now 19). He has continued to be my doctor even though I moved 2000 miles away for college, and so far, the only otolaryngologist who has listened to me and not tried to just give me a perscription and send me on my way. I don't know where you're from, but even if you call his office, they may be able to refer you to someone in your area. Hope it helps!

My mom watch the episode today Sunday 2-15-09 in Houston Texas with the lady with bad leg cramps, she had all my mom's symptoms. Mom fell asleep before seeing the diagnosis. I have taken to hundreds of doctors etc.. Just like everyone else here. My only hope is to find out what this episodes diagnosis was and I can go from there. Please can some email me with topic "Mystery Diagnosis" so I don't think it is spam and let me know what this diagnosis was. This is my last hope. Kooldaisy@cebridge.net This lady on the show used to drink water with Quinine in it. Mom has done all of this. Some please help.
Kooldaisy
KoolDaisy@cebridge.net Thanks in advance

Hi - Your story sounds familiar. You have been told a lot of things similiar to what I was told over a span of 10+ years. I was also told they suspected I had MS and then it was Lupus. The Lupus test was the hit. Though I did not have Lupus, the test indicated I had Sjogren's Syndrome and Lupus. Once I got into a specialist (Rheumatologist) I was told I had a mixture of Sjogren's, Connective Tissue Disease, Vasculitis, and Rheumatory Arthritis. The vasculitis still needs to be further diagnosed because I am still getting sores and the stomach pain. The prednisone is helping but the disorder still exists and causes some problems. If they have not done an arthriis blood screen, I would request one. You may find the answer to your problem. It took 5 doctors before I got the right blood test. Good Luck!

Thanks ever so much, This is at least a fresh start. I will let you know.

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Originally posted by Janie H:
I am 25 yrs old and have been at the doctors for almost a year. They don't know what I have I am tired of test after tests. My symptoms are weakness to both legs, unable to walk,run,dance,jump, I sit for more that 10 min. and I have to stretch my legs becuase I feel tightning. I walk as if I am drunk and I don't drink, I get dizzy, my hands have a tremor. I basically need to know why I can't walk right. My right foot drags sometimes and I am always falling down. Doctors have done MRI of my spine brain, x-rays of my hips, nerve ending studies and everything is NORMAL. So what is wrong? I just recently found and old friend of mine who is in her earyly 40's and she has the SAME SYMPTOMS! Also, no doctor can figure out what is wrong. Anyone with anything familiar please HELP!

I hope that you have found a diagnosis after all of this time, however I have had these symptoms with anger and depression too, and we found that I was being exposed to mercury vapors from our housefire. It has taken over a year to figure out what has been going on, and I was being told that I needed to just buck up and deal with minor aches and pains. (I would have something happen like bumping my arm and having my arm swell to more than three times its size from shoulder to finger tips, pretty hard to say I was being a hypochondriac at that point!)
I hope that you have luck with your dx.

About 2 years ago i was bit by a bug and i thought it was just like anyother bug bite. eventually it began to grow and it covered my knee and everyother day i would vomit, so i went to the doctor and within the next few weeks i got four blood tests that came out negative for lyme disease, but my doctor was still conviced i had that disease so he gave me medicine and it took about a month for the bite to go away but the vomitig still continued for the next year. they still never figured out what i had, but i no longer have any of the symptoms.

It stared when was in third grade I had this wired rash that was on mine hand around the time the school year was ending.So I told my mom and she told me it was stress but I don't belived her . Three years later I went to the doctor and she told me it was Dermatitis[that stress].So I told my mom are you sure or i'm going to be on mystery diagnosis or things are going to be crazy! , and i'm going to be on Doctor G [the show].

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Originally posted by mod_kelly:
Have you checked our Disease Database?

Help please...
I have more than one 'medical mystery' that took the doctors years to finally confirm. Fibromyalgia and lupus (SLE) were the worst of my problems, and I had to look things up online anf plead with the doctors to do the tests and it still took years for diagnosis. And worse I have allergies to all forms of anti-inflamitory medications (aspirin, NSAIDS, steriods, and shellfish which is in arthritis meds) so I have very little I can do for joint and muscle swelling I have.
Now I think I may have Cushing's disease as well, I had to talk the doctors into doing preliminary bloodwork, and if it comes back that I'm a likely candidate then they'll send me to an endocrinologist for further tests. The help I'm requesting is simply if anyone knows of anything other than ice that I can use to lessen the pain and discomfort of the swelling, and also if anyone else has ever had doctors call them crazy, or a liar to their face, because I've had both, when I've been right. I know doctors are taught to look for horses and not zebras when they hear hoofbeats, but I had years of pain without a diagnosis at all and at time completely rude and uncaring medical professionals. Thanks for listening.

I have checked every and been diagnosed with everything only now I have new symptoms and my family doesnt know what to believe anymore. And even my doctors are giving up on me....got an answer?

My medical problem has been a mystery for almost 6 years. I have done my own investigating, and believe I had an infection that damaged my cranial nerves. I have CONSTANT pain in the throat, jaws, ears. I have been to so many doctors.. It would be great if doctors could read this posting and HELP the many people crying out for relief. Think of the publicy you would receive. My heart and prayers go out to all of you. The only thing that has sustained me is my faith.

In April of this year I developed a left sided viual field cut in both eyes. This led to an MRI that showed a massive lesion in my right temporal lobe. I was diagnosed with Astrocytoma and underwent a craniotomy to have it removed. It was a few days later, while I was in the ICU, I was told I had no tumor, but the neurologists and pathologists were looking at Multiple Sclrosis as the cause of my condition.

The pathology showed demyelination caused the lesion. A single lesion is not enough evidence to clinically diagnose the standard forms of Multiple Sclerosis. I underwent several more tests which left the experts at Stanford scratching their heads. I was told the only way to tell if it was Multiple Sclerosis was to present with another lesion on an MRI.

I have since been diagnosed with Tumefactive Multiple Sclerosis. I have also been told my prognosis was favorable based on a study of thirty one people done in 1992. The information I have found on this form of MS that showed up as resembling a massive tumor. I need to know what kind of course I can expect. Will I develope relapsing/remitting ms or will it become a malignant form similar to Devics? How do I manage something no one seems to know anything about?

It all started when i was 6yrs old ...bad stomach ache..pale skin..nausea...hot and cold chills. Non stop trips to my family dr, school clinic and the er!! I heard everything in the book .. growning pain-allergies to milk products-woman problems-stress-depression-not using the bathroom enough-nerves..that it was all in my head?!...every time the drs gave me a different dx i tried everything i could do to make it better..but nothing worked other than pepto .. the pink stuff was my best friend!! My mom and I saw so many drs and each one never ran any diag. test other than blood work...unless i was in the er then i would get an ultrasound which would always come back clean maybe a few cyst on the overies but nothing else.. at the age of 21 tired of the pain and 30 pounds weight pain (in 3 months) i was worried maybe a tumor or something else in my stomach that drs missed...so i took things in my own hands.. i went to more drs until i finally found one who sent me to a stomach dr who didnt turn down my request for a colonoscopy and indoscope request (which others drs have since they thought i was tooo young for that).. during this they found ulcer in my colon .. thinking to myself thank god they found out what was wrong...a few weeks later .. still in pain they did more test CT..US..Small Bowel follow throught- and many more until they couldnt find anything...they decided to have me swallow the camera pill...a month after i took the pill and had the 36,000 pics of my insides my dr finally called me and told me its chrones..finally 17 yrs later at 23 (july 09) i had my dx!! Once i went to my drs and saw the picture from the camera pill its was shocking i have ulcers in my small intestines..over the years they have grown to bigger ulcers and a bad condition of chrones..im currently looking into the request med to maybe help me get rid of the chrones and ulcers! The point of me sharing this was this took over my life for those 17 years..more like it was my life!! But with hope and strong will .. I have my DX!! No matter the age or dr!! NEVER GIVE UP!! You know your body more than anyone!!! Might its be a few hrs to years of waiting .. you will always find that dr that will go over and beyond to help you get your life back!! I am so greatful just to know what caused these horrible pains!! Thank you to everyone who gave me MY LIFE BACK!!

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Originally posted by aestella:
My boyfriend has had a bought of bad luck the past couple of months, and we have yet to get a clear diagnosis. In September '07, he was having some trouble hearing in his left ear, but nothing severe. The following month his right eye was bloodshot, and he was diagnosed with iritis (inflammation of the iris). Then a month later, he had a stroke. All of his labs were normal, except he tested positive for a sickle-cell trait and a high homocysteine level. Finally in January '08, he had sudden severe hearing loss in his right ear. None of his doctors have been able to make a diagnosis that explains how a healthy 25 yr old can all of a sudden have all these problems. When researching his symptoms, the only thing I can come up with is Cogan's Syndrome. Does anyone have Cogan's Syndrome or know anyone with it? We just want to get a clear reason for his problems so we can prevent anything worse from happening. Any input is greatly appreciated.

Astella, I have cogans and Ive had all of the symptoms you've mentioned, including a stroke. I would like to chat via email because I've never spoke to anyone else who has this. If you get this let me know and maybe we can possible trade email addresses.

I am a 27 year old female. Since I was about 12 years old, I've had undiagnosed, ever-evolving stomach troubles. It began as an uncomfortable feeling in my stomach which was immediately followed by uncontrollable shaking (as if I were cold). My body would tense up and I would feel "off," unable to move around much or do anything requiring energy. Over the years it evolved to me having to use the bathroom (once or several times in a short period of time). This shaking/going to the bathroom has never been consistent- sometimes it will happen a few times in a week, other times I'll go a few months without any problems. In the last two or three years, in addition to the symptoms mentioned already, I would also have to urinate repeatedly, despite not drinking more than a sip or two of water. 99% of the time, this problem happens in the evening, sometime after dinner (anywhere from a couple minutes after dinner to a couple hours after dinner). Gastroenterologists and neurologists have been unable to find a diagnosis, despite numerous tests. Food diaries lead to no suspicious foods. While I have learned to live with this problem (even though it gets in the way of my everyday life), I am now bothered by new symptoms. In the last 9 months or so, I have had symptoms which I never had before: random bouts of feeling "carsick," getting full much sooner than I used to, and generally feeling "off." I would love to get any ideas of what this problem might be so that I can get on with my life. Thanks for reading!

My best friend is very, very sick. For about six months now, she has been experiencing very bad abdominal pain, which is accompanied by diarrhea, loss of appetite, occasional vomiting, and occasional fainting. She put off seeing a doctor until it got so bad this past August where she spiked a 103 degree fever and went into shock. She was hospitalized and after doing tests, they diagnosed her with Crohn's Disease, and a very bad case at that. But now they aren't sure because things keep getting worse and she isn't responding to the Crohn's treatment. Currently, the pain is a 10/10 on the pain chart and she can't do anything but lay in bed. The pain is too bad to even sit up. Her stomach and intestines are so swollen that she looks pregnant. The doctors have her on experimental steroids that may be hurting her body even more! She can't eat anything without horrible pain. The doctors are trying their best, but I just want to see if anyone else has any ideas. I am very worried about her. She is seventeen years old.

I'm a 21 and female and have had severe muscle tightness/knots and pain for almost 2.5 years that even the Mayo Clinic hasn't been able to help. The muscle pain is always present up and down my back and neck. I also have the muscle knots in my stomach and occasionally my calf muscles tighten up leaving my ankles inflamed and walking painful. The mayo clinic told me it was simply due to my hypermobility (I have Marfan's) and SI joint dysfunction. Yet, this does not explain the sudden/severe onset nor the knots in my stomach. The neuromuscular specialist was without a clue. I was sent for a second round of p/t combined with muscle relaxants and NSAIDs. None of this has made a difference (except that the muscle relaxants allow me to sleep) and all my tests have come back normal.
At this point I am at a loss for what kind of route to turn to for additional help and am scared of where this could be leading if it doesn't get better (the leg concerns are recent and occurring more often). I am wondering if anyone else out there has experienced anything similiar?